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What you've told us about ADHD services for adults

25/10/2017

As it is right now, I am still unsure who to contact should I have a concern with my medication

Attention deficit hyperactivity disorder (ADHD) is a group of behavioural symptoms that include inattentiveness, hyperactivity and impulsiveness. People with ADHD may also have additional problems, such as sleep and anxiety disorders.

The ADHD service for Islington residents is provided by the Camden and Islington NHS Foundation Trust. The service, which is for residents aged 18 and over, provides specialist assessment, as as well as medical and psychological interventions where necessary.

‘In the end there was a bulk email saying stop contacting us, we don’t have the resources, we’re overstretched. It was frustrating. I was told it was an 8 month list, I waited one and a half years. I looked into a private assessment but I couldn’t afford it.’

The demand for the service is far outstripping its capacity. Waiting times to access the service are very long, currently up to three years. Islington Clinical Commissioning Group asked Healthwatch to help them review the ADHD service by talking to existing service users. We hosted a focus group at the end of August, and carried out phone and email interviews in September.

  • We found that the patients we spoke to were very willing to consider alternative models of provision if this would help people to be seen more quickly.

‘It would be fine for nurses to lead follow up appointments. So many of the nurses are so good. It needn’t be the consultant, just someone who knows what you want.’

Once you receive an ADHD diagnosis you can access support and advice. Patients suggested that it would be helpful to access support and advice whilst waiting for assessment.This seems like a good idea as most people who are sent for assessment do end up being diagnosed with ADHD, but even if they do not, they could benefit from the learning around issues such as sleep hygiene.

‘I really benefitted from attending these courses, they were very well planned, [the tutor] led amazing sessions. The highlight of attending these ADHD management group sessions was hearing from others who were also ADHD. Hearing about their struggles, hopes, and problems and how they found creative solutions to cope and manage the condition was extremely therapeutic and useful for me.’

  • If you are an Islington resident using ADHD services and would like to share your views, please get in touch.
  • For more information on ADHD you can read the guidelines on the NICE website.
  • If you are an adult and would like to be assessed for ADHD, you need to make an appointment with your doctor and ask them to refer you for an assessment.
Image copyright CHANGE, www.changepeople.org

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Healthwatch Islington report on ADHD services for adults

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What you've told us about ADHD services for adults